Friday, December 27, 2013
Long Story Short
Friday, December 20, 2013
Friday Weight Loss
Friday Weigh In
Weight Loss
Last weigh in: 163Sunday, December 15, 2013
Life With a Special Needs Child
God is good. This is why. When you have a special needs child, life is different. But, sometimes you forget that your life is different. For example, yesterday L was making a whole bunch of crazy, silly noises. Not unusual for him. It's not all the time but happens most often when he's playing hard at home. But, for some reason, maybe because I was in the middle of making over 4 dozen cookies and a pan of magic bars it caught my attention (it doesn't always) and well, sometimes quite frankly, it's annoying. And to be brutly truthful, we do not live in an ASD (Austim Spectrum Disorder) world. So, I do feel it's our responsibility to train him up in the way he should go, both Biblically and emotionally as much as I an possibly do. So, I tell him, "L, stop. That's annoying." And he does. For a minute. And then well, it tends to blend into my psyche and I don't hear it.
Last week we had leaps and bounds of a major breakthrough with him. Our children's Christmas program at church. Our kids do two services. One at 9 am and again at 11 am. Well, we decided what would be best for him, would be one show. 11 am. We had seats as close to the stage as possible, in case he needed to be walked away quickly. The reason why this was such a breakthrough was not long ago, 6 months maybe, his end of the year concert at school he was all over the place. I was sitting in my seat crying on the inside wondering why in the world neither his gen ed or especially his ASD teacher were doing anything. So, mama bear rose up in me. I got out of my seat, walked in front of a crowd of at least 100 people and stood their with my child. Holding his hand. His shoulders. Reminding him to stand still. Trying to get him to participate with his neurotypical peers. Finally on the last song, he did.
Fast forward 6 months to last week, L stood on stage by himself, with only the occasional rub on the back reminders from one of the (awesome) adult actors on stage to turn around. He hammed it up. Waving to people. Giving thumbs up to his dad. He sang every song. Stood when he was supposed to. Sat when he was supposed to.
Then what came after I was not prepared for. The comments from adults. A good friend said her husband leaned over and said "hey L is up there". My baby blended in with NT friends. For a special needs mom, this is HUGE. Our children's pastor's wife, with tears in her eyes, said she didn't know who she enjoyed watching more, L or us watching L.
Compliments on from all of our friends only encourages me to continue to fight for him and be his advocate. Because I know HE CAN DO IT!!! He's shown us he can!!!
Our church, what a blessing. I'm so thankful for the time and sheer energy they put into him. I hope we are doing the same by pouring into their kids when we work our weeks in kidmin.
So to all of you that had compliments, thank you. It drives me to keep pushing him. Keep pushing through red tape when it happens. Keep pushing for things he deserves and needs. He is constantly getting better with time. And most of all, with God's Hand!!!
Friday, December 13, 2013
Friday Weigh In
Friday, November 29, 2013
Friday Weigh In
Saturday, November 23, 2013
Friday/Saturday Weigh Ins
Friday, November 15, 2013
This week's weigh in.....I've been a boring blogger lately
Sunday, November 10, 2013
Friday's Weigh In
Sunday, November 3, 2013
8 Years Ago Today. A Note.
8 years ago today, I had THE scariest day of my life. When I thought I was losing my child I prayed as best I could, joked around to keep my very high blood pressure down as much as I could and when people found out what was happening prayer was spreading like wild fire. Even someone who didn't know what was going on, had a notion to pray for me at a certain time that day and it was the exact time everything was happening.
L you may have been the scariest birth story I've ever encountered (notice you have no younger siblings) but you have such a light in you that only God Himself can give. We are so proud of all the accomplishments you have made. You read at a higher level than you should. Math you are probably doing the same. Life has thrown you a ton of lemons baby boy but you just look at them and say, "eh, lemons" and don't even bother to make lemonade. You make your own way in this world. You are kind and loving. Sweet and the funniest little guy I know.
God knew right whose house you belonged too. You admire Sissy. Love your Daddy and put up with all mommies kisses.
Happy 8th birthday (not my baby) anymore. We love you.
Saturday, November 2, 2013
8 Years Ago....Tomorrow
Here is what happened 8 years ago (yesterday and today): - again pretend you are reading this tomorrow -
Eight years ago yesterday (today) was a Wed. night and I went to the hospital to be observed because my blood pressure was really high. I had an appt. on Thursday for an NST (non-stress test) and to see the dr. at 10 and 10:50 am.
I was hooked up to the NST machine and things were fine. The baby’s heartrate wasn’t doing a whole of lot of reacting when they were moving, but still fine. Then all of a sudden the heartrate drops off. I thought the baby had moved. So, I waited and no one came. You see the NST room is in the back of the office where no one is and I get forgotten about. I tried moving it around and finally decided to go find a nurse asst. She came back in and couldn’t find it. She got another nurse asst. and she couldn’t find it. They got the Doppler, still couldn’t find it.
They take me up front to see the doctor. She gets out the Doppler and can’t find the heartrate. She brings the ultrasound machine into the room and calls the other doctor into the room. Of course by now I am crying. The other doctor came in the room. They were trying to whisper over my head. Then I am not sure if they could find the heartbeat or not, finally they did and began counting. The heartrate what I know now was in the 70’s.
By now they are calling 911. I had to get my cell phone and call P and my mom. P was taking M to the doctors because she was so sick. I had to track him down in the waiting room and to have them tell him to come because they were rushing me to the hospital by ambulance. Then I remembered to call back (even in the midst of craziness) to tell them I wasn’t going to the hospital we had planned on but to the one closest to my doctor’s office.
They called 911. They put me in an ambulance and we had a police escort to the hospital. I found out later that my blod pressure in the ambulance was 200/150.
I got to the hospital at approximately 12:00 pm and our baby BOY was born at 12:10 pm. He was born on Thursday, November 3rd at 12:10 pm. He weighed 8 lbs. 9 oz. and was 19 inches long. He has a head full of dark hair with natural highlights!
When the doctor came out to inform P & M the baby had been born, she had hugged M and said you have a beautiful baby brother (we didn't know what we were having), then she hugged P and began to cry and kept saying "I can't get it out". In that moment P thought I had passed away. But, she was just
so overwhelmed by the entire events of the day that she had to relieve some of the stress. And we'll, she's a woman too.
God was there with us that day. He protected L from all the harm that could have come to him. He protected me throughout the surgery and in the ambulence where my blood pressure was extremely high.
That's what happened 8 years ago today (tomorrow).
Even on the bad days when ASD is in high doses in our house, we can easily recall the events of this day and remember that L could EASILY not be here. Or he could have cerebal palsy. Or many other things could have went wrong that day.
L, you are the funniest, smartest, sweetest, cutest boy I know!! And yes, to quote anything you memorize (lately the Christmas program) but just a little reminder from the Veggie Tales God made you special and He loves you very much. And so do we!!!
Friday, November 1, 2013
Friday Weigh In
Friday, October 25, 2013
Friday Weigh In
Friday, October 11, 2013
Friday Weigh In
Tuesday, October 8, 2013
Before and Right Now Pics
Monday, September 30, 2013
Oops. Need to blog more.
Friday, September 20, 2013
Friday Weigh In
Sunday, September 15, 2013
Finally Feel Like Blogging
Friday, August 30, 2013
Friday Weigh In
Monday, August 26, 2013
Friday, August 23, 2013
Weigh in
Wednesday, August 21, 2013
TTT
Saturday, August 10, 2013
Still Learning Lessons
The biggest thing I am learning.....QUIT WEIGHING MYSELF!!! I'll only get disappointed!!! YIKES!
Ok, so what did I tell you all, Fridays are my weigh in day, right? So, what did I do? That's right, weighed myself today. Bad idea. Some how I managed to gain some weight. Back to 190.2....sigh. Could be water...could be that s'more I had with the kids last night (even though I counted every last calorie and fat gram I ate!!).
So, what am I learning? Only weigh myself once a week. It will be my weight for the week. It is the lowest you are going to be. Your weight ebbs and flows like the ocean. It will go up and down all week. You are being counterproductive to yourself by weighing yourself EVERY day and only hurting yourself (especially at this stage of my weight loss) by looking at the scale.
So, my new challenge.....only Fridays. Unless I am at the doctors and well, then it's just plain unavoidable.
So, what are you still learning post-op?
Friday, August 9, 2013
Friday Weigh In
Thursday, August 8, 2013
TTT
Thursday, August 1, 2013
TTT
Wednesday, July 31, 2013
Tight
EDITED: I HAD to correct the content Siri had wrong. Although, I got a little chuckle at hoe horrible some of it was!!!